The parents of a child who is being treated for a rare condition at Great Ormond Street Hospital have taken on a huge challenge in a bid to raise money.

Henry was born with lymphatic malformation, an abnormality which causes cysts in his lymphatic system and leads to swelling on the side of his face.

His diagnosis came when he was just two days old following an MRI scan and has been receiving treatment at the hospital since he was six weeks old.

But his mum and dad, Daniel and Sophie Rix from Wallington, joined hundreds of others in the annual Walkie Talkie Tower Climb on March 2.

It’s the second year in a row the hospital’s charity has hosted the Tower Climb event at one of capital’s tallest buildings, the 'Walkie Talkie' building in Fenchurch Street.

Daniel and Sophie have taken part in the fundraising challenge in a bid to raise money for the hospital where Henry is currently being treated.

They climbed more than 800 steps across 36 floors to reach the top of the distinctive building – joining other participants at its Sky Garden which is 160 metres above ground.

It’s both where they marked Henry’s first birthday and where they got engaged.

Sophie said: “We’re so pleased that we completed the Tower Climb in under 10 minutes, this was our aim! It was a great event and really motivating knowing that so many friends and family had sponsored us to take part, and that the money we’ve raised is supporting the hospital where Henry is being treated.

“Henry was waiting for us at the top with our families in the Sky Garden, a place which holds special memories for us, and this gave us the drive we needed to reach the summit.

“It was such a lovely surprise when the cake came out and everyone started singing happy birthday to Henry - it was his first taste of chocolate and he definitely approved! We spent the rest of the weekend celebrating his birthday with family and friends.”

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Henry with his mum Sophie and his chocolate birthday cake

The couple have raised more than £1,500 between them, having smashed their original £250 target, and reached their goal within 24 hours.

Money raised from those who participated in the Walkie Talkie Tower Climb will go towards the hospital’s “most urgent fundraising needs”.

This includes research to find treatments for the most complex childhood illnesses and help refurbish the hospital’s facilities.

Laura Savory, GOSH Children’s Charity’s head of community fundraising, said: “We’re so grateful to Sophie, Daniel and all our Tower Climb heroes for taking on this challenge as they sprint to the summit to raise money for a fantastic cause.”

GOSH’s event was sponsored by Delta Air Lines and supported by Rothesay Life.

You can find out more here.