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‘Abandoned’ Jane left to struggle on her own
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| Here's two I made earlier: Jane shows off her homemade fairies Deadlinepix KT19870 |
I'm meeting Jane but when I get to her house Tabby answers the door. Ickle left about an hour ago.
I'm the only person who has visited this traumatised and troubled woman today.
Jane, or Tabby, or Ickle, suffers from Dissociative Identity Disorder (DID). It is a coping method Jane's mind has adopted to deal with the trauma she has experienced in her life.
That trauma includes her care worker dying about four years ago, and other incidents that Jane wanted to keep private due to their extremely personal nature.
But it was when she was discharged in 2005 from the Lilacs ward at Tolworth Hospital that her personality manifestations began.
She tore her house to bits, wrote suicidal messages on the walls and started having seizures.
Phil Lockwood created a mental health forum after a friend and DID sufferer committed suicide. Through the forum he met Jane and they became friends. He now acts as her advocate and is fighting alongside her to get treatment.
He told me: "Jane is the host personality but Ickle has been out most of the time."
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| Artistic endeavour: Jane's drawings |
Ickle is a nine year-old-girl obsessed with making and drawing fairies. It's not just Jane's behaviour that changes when her personality does. She will sound different, act different, have a different posture and look in her eye. In every aspect apart from her body she is nine years old.
Phil recalled: "The first time I met her my 12-year-old daughter came and they looked like two children playing. Ickle was showing her how to make fairies."
Other personalities include Tabby and Mute, who will only converse on internet message services and through forums. Ickle comes out when life gets too hard for Tabby, and Mute will appear in times of severe stress.
Phil added: "Sometimes you don't know who it will be."
Jane wants treatment. She had been receiving some at a centre called the Retreat in York but her funding was stopped and she could not stay. She returned to her home in Tolworth but did not want to return to Lilacs, the scene of traumatic events in her past.
She said: "One day I just broke down - you can't imagine how shocking it was but they just ignored it.
"They're just not offering help for what's wrong with me."
And Jane believes South West London and St George's (SWLSG) Mental Health Trust, which has provided her treatment, has failed her.
She said: "They've taken everything away from me
"They've not got the facilities to treat me. The Retreat does but they won't agree for me to go back there. They've wrecked my life."
Phil added: "She needs specific treatment in DID. There's no structured treatment and no speciality in SWLSG. They've got no experience in it and have no idea what they're doing.
| “So I sent fairies to people who were hidden away – as a way of connecting us all. It was a certain way of surviving.” | | Jane |
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"She's clinging on to life."
Jane's life is confined to the four walls of her flat. She has only left the building to attend meetings at the hospital to discuss her treatment.
She said: "I can't imagine life outside. I didn't have a Christmas tree. I didn't notice the difference between summer and winter. Some people thought I'd died.
"I thought what can I do to stop my mind from giving way?"
That's when she decided to make fairies, one for each day she hadn't received the help she felt she needed and deserved.
She now has hundreds, but some light has come from the dark that has engulfed her life.
She said: "I thought there must be so many people hurting out there hidden behind closed doors that nobody knows about.
"So I sent fairies to people who were hidden away - as a way of connecting us all. It was a certain way of surviving."
Jane is an articulate and clever woman whose condition and her situation seemed at odds with the person describing it. And she has a fantastic artistic talent.
Her fairies are sold over the world via the internet, she has a local fan base of people who congregate at her window to admire her work, and she has even had mothers ask her to decorate their child's bedroom with fairies.
She has begun writing for Fairy World magazine. But this glimmer of hope is hampered by her frequent seizures. She also developed anorexia, and is worried she might have auto-immune deficiency, making her prone to rashes and making it hard to walk.
She needs treatment but a simple mention of Lilacs provokes a severe reaction.
She said: "I could die there and no one would notice."
But this fear can be misinterprated as aggression or abusive behaviour, and Jane worries this is the reason she is being refused funding for treatment in York.
The trust could not explain why it would not fund Jane's treatment in York as it does not comment on individual cases.
A spokesman added: "We provide a range of services in Kingston for people who live with severe and enduring mental health issues.
"These can be accessed from the community mental health team, usually through referral by a GP.
"Where clinical teams identify that an individual needs specialist assessment and treat- ment not catered for locally, this would be referred to the primary care trust for consideration for funding."
3:44pm Wednesday 19th March 2008
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CommentPosted by: Holmstack, Yorkshire on 7:47pm Wed 19 Mar 08
It is disgusting the way Jane is being treated by St George and Tolworth MH Trust, the people who run it should hang their heads in shame, (if they have any), with the way that they are treating this young woman being abusive. Then again, I expect it has to work this hard to maintain it’s well deserved, (in my opinion), reputation as one of the worst MH trusts in the UK.
If a dog, elderly person or child was treated how Jane is somebody would end up in court, how come the trust directors are still sitting at their desks drawing their massive salaries while Jane and countless others suffer?
There are many of us that will not rest until Jane is safely being treated at The Retreat, I hope the trust is ready for the protests, (all invited), and legal action we have planned and I bet they can find the money to defend any legal action we bring, even if it is not there to provide Jane with the treatment she needs and deserves.
I thought Health Trusts had a duty of care?
Holmstack
It is disgusting the way Jane is being treated by St George and Tolworth MH Trust, the people who run it should hang their heads in shame, (if they have any), with the way that they are treating this young woman being abusive. Then again, I expect it has to work this hard to maintain it’s well deserved, (in my opinion), reputation as one of the worst MH trusts in the UK.
If a dog, elderly person or child was treated how Jane is somebody would end up in court, how come the trust directors are still sitting at their desks drawing their massive salaries while Jane and countless others suffer?
There are many of us that will not rest until Jane is safely being treated at The Retreat, I hope the trust is ready for the protests, (all invited), and legal action we have planned and I bet they can find the money to defend any legal action we bring, even if it is not there to provide Jane with the treatment she needs and deserves.
I thought Health Trusts had a duty of care?
Holmstack
Posted by: Anna Wonnacott, Devon UK on 10:43pm Wed 19 Mar 08
I am disgusted by the way Jane and her Gang od dissasociative alters have been treated by the professionals that are paid to "care" for her. She has identified the specialist treatment centre that is apropriate for her problems, a course of action which has benn endorsed by specialists in the field of traums-induced DID, yet her local health trust refuse to allow her access to this care and treatment. In my opinion this is negligent, cruel, dangerous and is causing Jane and the Gang further distress. This inaction is making her health deteriorate and I believe that these decisions by the trust are being made on financial grounds only- not about what is best practise and medical care for an extremely vulnerable and unwell young woman. She has been ignored and left without apprpriate support for years. Maybe now that there is some publicity about their shameful neglect, those that have the power to help Jane will be sufficiantly embarrassed to force them to act and provide the care that she needs and deserves. The Retreat is an expert centre for treating this illness. Arguements about money are irrelevant when it is about lifesaving treatment. I wish Jane, Tabi, Ickle, Mute and all the Gang the very best in their continued fight to obtain the essential therapeutic care. Someone as ill as Jane should not have to fight for care. I personally feel ashamed to be part of a society that treats our most vulnerable members in this way. I hope those people that are in positions of power wake up to their responsibilities and find a conscience.
I am disgusted by the way Jane and her Gang od dissasociative alters have been treated by the professionals that are paid to "care" for her. She has identified the specialist treatment centre that is apropriate for her problems, a course of action which has benn endorsed by specialists in the field of traums-induced DID, yet her local health trust refuse to allow her access to this care and treatment. In my opinion this is negligent, cruel, dangerous and is causing Jane and the Gang further distress. This inaction is making her health deteriorate and I believe that these decisions by the trust are being made on financial grounds only- not about what is best practise and medical care for an extremely vulnerable and unwell young woman. She has been ignored and left without apprpriate support for years. Maybe now that there is some publicity about their shameful neglect, those that have the power to help Jane will be sufficiantly embarrassed to force them to act and provide the care that she needs and deserves. The Retreat is an expert centre for treating this illness. Arguements about money are irrelevant when it is about lifesaving treatment. I wish Jane, Tabi, Ickle, Mute and all the Gang the very best in their continued fight to obtain the essential therapeutic care. Someone as ill as Jane should not have to fight for care. I personally feel ashamed to be part of a society that treats our most vulnerable members in this way. I hope those people that are in positions of power wake up to their responsibilities and find a conscience.
Posted by: annie, Bournemouth on 12:15pm Thu 20 Mar 08
I am very angry about the way the gang have been treated, the worst thing is that they're not the only ones. So many people have to fight for treatment, it's such a cruel system to go through when all energy is being used to fight to survive. Changes need to be made. good luck Jane.
I am very angry about the way the gang have been treated, the worst thing is that they're not the only ones. So many people have to fight for treatment, it's such a cruel system to go through when all energy is being used to fight to survive. Changes need to be made. good luck Jane.
Posted by: Emily, Suffolk on 3:04pm Thu 20 Mar 08
Mental Health is horrifically underfunded. It is clear that someone like Jane wants and needs help that she simply isn't getting, and that is just unacceptable. If it was any other aspect of health people would not simply be left untreated, but because it is mental health the NHS seems to think it is acceptable to just ignore it, or give far less help than required. So many people are left to struggle with severe mental health problems, and perhaps are given an appointment once a week, or maybe not even that, when they are in fact severely ill. Something needs to happen to mental health services in this country, as at present they are simple unacceptable.
Mental Health is horrifically underfunded. It is clear that someone like Jane wants and needs help that she simply isn't getting, and that is just unacceptable. If it was any other aspect of health people would not simply be left untreated, but because it is mental health the NHS seems to think it is acceptable to just ignore it, or give far less help than required. So many people are left to struggle with severe mental health problems, and perhaps are given an appointment once a week, or maybe not even that, when they are in fact severely ill. Something needs to happen to mental health services in this country, as at present they are simple unacceptable.
Posted by: Mandy, Hampshire on 3:04pm Thu 20 Mar 08
This is terrible, and unfortunately it is something which is happening in mental health services around the country. People who need help and are asking for help are ignored, the attitudes of some staff towards patients are astounding and mental health teams often seem to be the last priority of funding from the NHS.
I hope Jane gets the help that she needs - let's hope something positive comes out of her struggle.
This is terrible, and unfortunately it is something which is happening in mental health services around the country. People who need help and are asking for help are ignored, the attitudes of some staff towards patients are astounding and mental health teams often seem to be the last priority of funding from the NHS.
I hope Jane gets the help that she needs - let's hope something positive comes out of her struggle.
Posted by: Jo (MrsDC), Bristol on 3:09pm Thu 20 Mar 08
Unfortunately there are lots of things I would like to say but can't due to legal issues.
Jane's story saddens me, and even moreso knowing that it's not a one-off, in my opinion & I know the opinion of many others this mistreatment/neglect is prevelant accross the country. Some of us know too well what the consequences of what this can be - many of us have been touched by the death of the friend mentioned in this article - Kate. And many continue to struggle on.
We will keep fighting & never give up hope that Jane will get the treatment she needs and deserves. x
Unfortunately there are lots of things I would like to say but can't due to legal issues.
Jane's story saddens me, and even moreso knowing that it's not a one-off, in my opinion & I know the opinion of many others this mistreatment/neglect is prevelant accross the country. Some of us know too well what the consequences of what this can be - many of us have been touched by the death of the friend mentioned in this article - Kate. And many continue to struggle on.
We will keep fighting & never give up hope that Jane will get the treatment she needs and deserves. x
Posted by: Zarah, Cambridge on 3:18pm Thu 20 Mar 08
Cases like this make me feel ashamed to say I work for the nhs. Yes, there is only a limited pot of money available, but surely it is better to spend that money on something likely to result in considerable clinical improvement (research has shown that treatments such as that provided at the retreat are effective in individuals with dissociative identity disorder) is surely better than continuing pouring money down the drain on local therapeutic options that clearly aren't working for this unfortunate young woman... Large quantities of cash have presumably been spent on admissions to diagnose her dissociative seizures, MRI scans and other expensive investigations, surely it would be better to spend the money on treatment of her condition...
Heres hoping she is referred for the treatment she needs in the very near future...
Cases like this make me feel ashamed to say I work for the nhs. Yes, there is only a limited pot of money available, but surely it is better to spend that money on something likely to result in considerable clinical improvement (research has shown that treatments such as that provided at the retreat are effective in individuals with dissociative identity disorder) is surely better than continuing pouring money down the drain on local therapeutic options that clearly aren't working for this unfortunate young woman... Large quantities of cash have presumably been spent on admissions to diagnose her dissociative seizures, MRI scans and other expensive investigations, surely it would be better to spend the money on treatment of her condition...
Heres hoping she is referred for the treatment she needs in the very near future...
Posted by: Mike, bristol on 3:23pm Thu 20 Mar 08
I have this friend that suffers from mental illness, and she's moved all accross england and everywhere she has been she has beenI feel she has been let down by many of the different mental health services she's seen.
It's a shame that these things happen and they shouldn't be allowed to continue to let people down that need them the most
I have this friend that suffers from mental illness, and she's moved all accross england and everywhere she has been she has beenI feel she has been let down by many of the different mental health services she's seen.
It's a shame that these things happen and they shouldn't be allowed to continue to let people down that need them the most
Posted by: Flick, Lancashire on 4:13pm Thu 20 Mar 08
Its a shame people are being treated like this, it shouldnt be happening
Well done Jane and Gang for bringing this to the media.
Its a shame people are being treated like this, it shouldnt be happening
Well done Jane and Gang for bringing this to the media.
Posted by: Dave, Mitcham on 4:13pm Thu 20 Mar 08
Dress in a Hoody, carry a knife, stab someone (woops sorry, My mistake, you need to damage some propoerty, that gets custodial sentences, not stabbings!) & thats how you will get your help.
The Court will put you away & then you will get access to everything you need. Including Psychiatric help. You see, in this Country, you have to be a criminal to get the help you need. Sorry, but its true!
Dress in a Hoody, carry a knife, stab someone (woops sorry, My mistake, you need to damage some propoerty, that gets custodial sentences, not stabbings!) & thats how you will get your help.
The Court will put you away & then you will get access to everything you need. Including Psychiatric help. You see, in this Country, you have to be a criminal to get the help you need. Sorry, but its true!
Posted by: Rache, Manchester on 5:39pm Thu 20 Mar 08
I love you so much Jane.
I want help for you with everything in me and I truly hope this article helps.
You deserve recovery and to be the amazing woman you are.
I love you so much Jane.
I want help for you with everything in me and I truly hope this article helps.
You deserve recovery and to be the amazing woman you are.
Posted by: Emmy, Lancashire on 6:51pm Thu 20 Mar 08
I'm also in the position of being continually refused much needed treatment. It's very frustrating and worsens your condition. When will these stupid big wigs realise that sooner is much better than later? If local services don't have the facility to treat Jane then they should fun her to be back at the Retreat.
Good luck, Jane and co. So many people are evidently supporting you.
I'm also in the position of being continually refused much needed treatment. It's very frustrating and worsens your condition. When will these stupid big wigs realise that sooner is much better than later? If local services don't have the facility to treat Jane then they should fun her to be back at the Retreat.
Good luck, Jane and co. So many people are evidently supporting you.
Posted by: Rebecca Lockwood on 9:39pm Thu 20 Mar 08
I'm 13 and Ickle and her gang are my friends. Even at my age I think it's not right the way she is being treated by the hospital so why can't the doctors?
I'm thinking of you Ickle and the fairie you sent me is happy living in my bedroom.
Becca X
I'm 13 and Ickle and her gang are my friends. Even at my age I think it's not right the way she is being treated by the hospital so why can't the doctors?
I'm thinking of you Ickle and the fairie you sent me is happy living in my bedroom.
Becca X
Posted by: Anon on 10:55pm Thu 20 Mar 08
I am just sending you all my love, strength and courage. Stay strong, I know what you are going through (I too have DID) You are in my thoughts.
I am just sending you all my love, strength and courage. Stay strong, I know what you are going through (I too have DID) You are in my thoughts.
Posted by: Jules, London on 11:31pm Thu 20 Mar 08
I have known of Tabi & the gang for quite some time. It breaks my heart that the right help is not being put into place. This is urgent and Tabi is rightfully deserving of the correct treatment. I am wondering if the "Direct Payments" scheme would be a way of some funding being made available for Tabi to spend in her preferred and best treatment of choice?
Please help Tabi and the gang.
RIP Kate.
I have known of Tabi & the gang for quite some time. It breaks my heart that the right help is not being put into place. This is urgent and Tabi is rightfully deserving of the correct treatment. I am wondering if the "Direct Payments" scheme would be a way of some funding being made available for Tabi to spend in her preferred and best treatment of choice?
Please help Tabi and the gang.
RIP Kate.
Posted by: beth, wakefield on 10:07pm Fri 21 Mar 08
It is disgusting the way Jane is been treated. Time after time people with mental health problems are ignored, if you had a broken leg then it would get fixed. So why when you have mental health problems do you get ignored. Just imagine if someone went to hosptial with a broken leg and they said can't treat you not enough money, there would be outrage. We all need to work together to make these people listen and give jane the treatment she needs. I am thinking of you jane and ickle and the gang. I have my fairy you made me in my bedroom
It is disgusting the way Jane is been treated. Time after time people with mental health problems are ignored, if you had a broken leg then it would get fixed. So why when you have mental health problems do you get ignored. Just imagine if someone went to hosptial with a broken leg and they said can't treat you not enough money, there would be outrage. We all need to work together to make these people listen and give jane the treatment she needs. I am thinking of you jane and ickle and the gang. I have my fairy you made me in my bedroom
Posted by: Gudrun Frerichs, Auckland, New Zealand on 1:03am Mon 24 Mar 08
Jane’s situation is - although sad - not very rare. That has partly to do with the limited funding for mental health treatment and rationing of health care. Here in New Zealand mental health treatment is to a large extent limited to drug treatment - I assume it is similar in England. Very rarely is 'talking therapy' offered. Also, dissociative identity disorder (DID) has caused much controversy over the last 20 years and mental health practitioners either don't know how to treat it (very few training institutions teach how to deal with traumatised patients), or can not agree on what sort of treatment is best suited to help people recover from DID.
A lot of emotional support and care, respect, and appreciation is required to help all the different parts of the personality to come together so to speak and work like a well-trained team towards achieving a mutually agreed upon goal. Until Jane finds a therapist who is able to provide that and is willing to commit to walk for some years alongside her on the journey to recovery, she might find it beneficial to use available means of self-help such as friends, support groups for DID clients, websites of support groups, or literature (for example 'Amongst Ourselves', a book written by a DID sufferer and her therapist (?) comes to mind). She might find some useful hints and suggestions on my website multiplevoice.com.
DID is not difficult to treat, however, it takes usually several years and requires a lot of courage, strength, and commitment from both client and therapist. I hope the publication of Jane’s story helps her to find such a dedicated therapist.
Jane’s situation is - although sad - not very rare. That has partly to do with the limited funding for mental health treatment and rationing of health care. Here in New Zealand mental health treatment is to a large extent limited to drug treatment - I assume it is similar in England. Very rarely is 'talking therapy' offered. Also, dissociative identity disorder (DID) has caused much controversy over the last 20 years and mental health practitioners either don't know how to treat it (very few training institutions teach how to deal with traumatised patients), or can not agree on what sort of treatment is best suited to help people recover from DID.
A lot of emotional support and care, respect, and appreciation is required to help all the different parts of the personality to come together so to speak and work like a well-trained team towards achieving a mutually agreed upon goal. Until Jane finds a therapist who is able to provide that and is willing to commit to walk for some years alongside her on the journey to recovery, she might find it beneficial to use available means of self-help such as friends, support groups for DID clients, websites of support groups, or literature (for example 'Amongst Ourselves', a book written by a DID sufferer and her therapist (?) comes to mind). She might find some useful hints and suggestions on my website multiplevoice.com.
DID is not difficult to treat, however, it takes usually several years and requires a lot of courage, strength, and commitment from both client and therapist. I hope the publication of Jane’s story helps her to find such a dedicated therapist.
Posted by: holmstack, Yorkshire on 10:01am Mon 24 Mar 08
[quote][bold]Gudrun Frerichs[/bold] wrote:
Jane’s situation is - although sad - not very rare. That has partly to do with the limited funding for mental health treatment and rationing of health care. Here in New Zealand mental health treatment is to a large extent limited to drug treatment - I assume it is similar in England. Very rarely is 'talking therapy' offered. Also, dissociative identity disorder (DID) has caused much controversy over the last 20 years and mental health practitioners either don't know how to treat it (very few training institutions teach how to deal with traumatised patients), or can not agree on what sort of treatment is best suited to help people recover from DID. A lot of emotional support and care, respect, and appreciation is required to help all the different parts of the personality to come together so to speak and work like a well-trained team towards achieving a mutually agreed upon goal. Until Jane finds a therapist who is able to provide that and is willing to commit to walk for some years alongside her on the journey to recovery, she might find it beneficial to use available means of self-help such as friends, support groups for DID clients, websites of support groups, or literature (for example 'Amongst Ourselves', a book written by a DID sufferer and her therapist (?) comes to mind). She might find some useful hints and suggestions on my website multiplevoice.com. DID is not difficult to treat, however, it takes usually several years and requires a lot of courage, strength, and commitment from both client and therapist. I hope the publication of Jane’s story helps her to find such a dedicated therapist. [/quote] Jane has a therapist/psychiatri
st who is very experienced and knowledgeable regarding DID who has experience of Jane and is willing to treat her as an inpatient at The Retreat in York with the problem being that her local health trust will not fund this treatment she needs and they do not have the facilities/experienc
e to treat her within the trust in both mine and Jane’s experience.
As for other sources of support both Tabi and Ickle are not only members, but moderators, (the both have their own accounts as does Jane and Mute), on Kate’s Place, a peer mental health support forum they were founder members of and when it comes to literature, (and knowledge), they have a library and understanding of DID that would put most psychiatric professionals to shame, with this being one of the reasons why they refuse to accept treatment that they know will not be effective and perhaps even make things worse.
I have never known any person fight so hard, with so little support, to get well as Jane, SWLSG NEEDS to provide funding for the specialist treatment that Jane needs, treatment they are NOT able to provide.
Holmstack
Gudrun Frerichs wrote:
Jane’s situation is - although sad - not very rare. That has partly to do with the limited funding for mental health treatment and rationing of health care. Here in New Zealand mental health treatment is to a large extent limited to drug treatment - I assume it is similar in England. Very rarely is 'talking therapy' offered. Also, dissociative identity disorder (DID) has caused much controversy over the last 20 years and mental health practitioners either don't know how to treat it (very few training institutions teach how to deal with traumatised patients), or can not agree on what sort of treatment is best suited to help people recover from DID. A lot of emotional support and care, respect, and appreciation is required to help all the different parts of the personality to come together so to speak and work like a well-trained team towards achieving a mutually agreed upon goal. Until Jane finds a therapist who is able to provide that and is willing to commit to walk for some years alongside her on the journey to recovery, she might find it beneficial to use available means of self-help such as friends, support groups for DID clients, websites of support groups, or literature (for example 'Amongst Ourselves', a book written by a DID sufferer and her therapist (?) comes to mind). She might find some useful hints and suggestions on my website multiplevoice.com. DID is not difficult to treat, however, it takes usually several years and requires a lot of courage, strength, and commitment from both client and therapist. I hope the publication of Jane’s story helps her to find such a dedicated therapist.
Jane has a therapist/psychiatri
st who is very experienced and knowledgeable regarding DID who has experience of Jane and is willing to treat her as an inpatient at The Retreat in York with the problem being that her local health trust will not fund this treatment she needs and they do not have the facilities/experienc
e to treat her within the trust in both mine and Jane’s experience.
As for other sources of support both Tabi and Ickle are not only members, but moderators, (the both have their own accounts as does Jane and Mute), on Kate’s Place, a peer mental health support forum they were founder members of and when it comes to literature, (and knowledge), they have a library and understanding of DID that would put most psychiatric professionals to shame, with this being one of the reasons why they refuse to accept treatment that they know will not be effective and perhaps even make things worse.
I have never known any person fight so hard, with so little support, to get well as Jane, SWLSG NEEDS to provide funding for the specialist treatment that Jane needs, treatment they are NOT able to provide.
Holmstack
Posted by: annie, Bournemouth on 8:49pm Mon 24 Mar 08
funny how there's no money but the minute things like Northern Rock get into trouble billions are sent their way. where does that money come from? Not to mention that the department for work and pensions are investigating the people aged 18-40 who are claiming benefits because of mental health problems- here's a tip- give us the right treatment, the right support, and maybe we can lead productive lives.
funny how there's no money but the minute things like Northern Rock get into trouble billions are sent their way. where does that money come from? Not to mention that the department for work and pensions are investigating the people aged 18-40 who are claiming benefits because of mental health problems- here's a tip- give us the right treatment, the right support, and maybe we can lead productive lives.
Posted by: Lisa, Gloucestershire on 9:42pm Mon 24 Mar 08
I have known Jane for 10 years and have seen how hard she has had to fight for the treatment she got at The Retreat. I have seen her being tube fed for her anorexia and claw her way back to learning to look after herself again. But again and again the treatment she gets is short sighted and downright neglectful.
There have been care plans and treatment plans that have been made and then not followed through. Several independant specialists have diagnosed Jane with a DID but her NHSTrust refuses to follow te specialist recommendation and leaves her in an unsafe situation at home.
Mental Health Services are drastically underfunded, but that is no excuse for the way the NHS has treated or should I say not treated Jane over the past few years she has been neglected, misdiagnosed and mistreated since her return from The Retreat and as she has got iller and iller since then with no one being willing to actually get her the help she deserve.
Jane is a very brave lady, she is now so dfferent from when I first knew her and her condition has drastically deteriorated in the past 2-3 years, she looks very different.
Once I could ring and talk to her but now she has so many fits and is so ill physically mental health aside that she cant maintain relationships even. If Janes mis treatment had happened in a purely medical setting there would have been hell to pay long ago, yet because so much of her ill health is down to mental health she has been left to suffer.
It is perfectly true that animals have not been left to suffer as much as her doctors are aloowing Jane to suffer. If they had stuck with the recommendations made by professionals she could be living a relativally "normal" life now, but she cant go out shopping go to the cinema visit friends, her quality of life is unbearable and I call on you the public to make the polititians and NHS to get it sorted now and get her to The Retreat.
Jane is so brave to dare to go public with some of what has happened and I just hope and pray that justice and common sense will prevail and funding will be given to get her the help she clearly needs and definitely deserves. I have known her for 10 years and I have never met anyone so courageous and determined to get well. She is a very talented and intelligent woman, she doesnt deserve the hell she is living right now. PLEASE HELP HER. Someone out there can fund her treatment or make sure her MHS Trust does its job.Hang on in there Jane and Gang, dont let them win now.
I have known Jane for 10 years and have seen how hard she has had to fight for the treatment she got at The Retreat. I have seen her being tube fed for her anorexia and claw her way back to learning to look after herself again. But again and again the treatment she gets is short sighted and downright neglectful.
There have been care plans and treatment plans that have been made and then not followed through. Several independant specialists have diagnosed Jane with a DID but her NHSTrust refuses to follow te specialist recommendation and leaves her in an unsafe situation at home.
Mental Health Services are drastically underfunded, but that is no excuse for the way the NHS has treated or should I say not treated Jane over the past few years she has been neglected, misdiagnosed and mistreated since her return from The Retreat and as she has got iller and iller since then with no one being willing to actually get her the help she deserve.
Jane is a very brave lady, she is now so dfferent from when I first knew her and her condition has drastically deteriorated in the past 2-3 years, she looks very different.
Once I could ring and talk to her but now she has so many fits and is so ill physically mental health aside that she cant maintain relationships even. If Janes mis treatment had happened in a purely medical setting there would have been hell to pay long ago, yet because so much of her ill health is down to mental health she has been left to suffer.
It is perfectly true that animals have not been left to suffer as much as her doctors are aloowing Jane to suffer. If they had stuck with the recommendations made by professionals she could be living a relativally "normal" life now, but she cant go out shopping go to the cinema visit friends, her quality of life is unbearable and I call on you the public to make the polititians and NHS to get it sorted now and get her to The Retreat.
Jane is so brave to dare to go public with some of what has happened and I just hope and pray that justice and common sense will prevail and funding will be given to get her the help she clearly needs and definitely deserves. I have known her for 10 years and I have never met anyone so courageous and determined to get well. She is a very talented and intelligent woman, she doesnt deserve the hell she is living right now. PLEASE HELP HER. Someone out there can fund her treatment or make sure her MHS Trust does its job.Hang on in there Jane and Gang, dont let them win now.
Posted by: Martin, Norfolk on 4:49pm Wed 26 Mar 08
Mental illnessess are the poor man of the NHS. They are the first to receive financial cutbacks, and the only time you hear of people who have mental disorders is when they break the law, frightening society into thinking they should all be locked up. Yet we hardly hear of the talented, intelligent people who fight everyday just to stay alive.
Funding is ludicrously low, and we lose many of our most creative to the government and PCTs sweeping it under the carpet.
Keep going gang, we need you here.
Mental illnessess are the poor man of the NHS. They are the first to receive financial cutbacks, and the only time you hear of people who have mental disorders is when they break the law, frightening society into thinking they should all be locked up. Yet we hardly hear of the talented, intelligent people who fight everyday just to stay alive.
Funding is ludicrously low, and we lose many of our most creative to the government and PCTs sweeping it under the carpet.
Keep going gang, we need you here.
Posted by: kitty, Bris Australia on 1:14am Thu 27 Mar 08
It saddens me to see wat Jane goes thru. And many more of mental health sufferers. Myself and a friend bein one of them. The service is shocking also here in Australia. Loosing a g/friend last year because of the lack of assistance has helped me fight for my health. At present another friend is fighting also, thankfully together we support each other. Darned if i will lose another friend to the lack of public assistance. Thats why i choose to go private and get well also with my faith in God and support from my pastors i have battled through. Together with my medical team & church I wont fall prey to the lack of public system. no i dont pay for my treatment cept for meds thankfully we have medicare. Maybe this is the only way to go for many ppl if they can. Until then my prayers are with all those who suffer 24/7 and cant have a life outside their 4 walls. Public Mental Health needs attention badly all over the world Not just the UK
It saddens me to see wat Jane goes thru. And many more of mental health sufferers. Myself and a friend bein one of them. The service is shocking also here in Australia. Loosing a g/friend last year because of the lack of assistance has helped me fight for my health. At present another friend is fighting also, thankfully together we support each other. Darned if i will lose another friend to the lack of public assistance. Thats why i choose to go private and get well also with my faith in God and support from my pastors i have battled through. Together with my medical team & church I wont fall prey to the lack of public system. no i dont pay for my treatment cept for meds thankfully we have medicare. Maybe this is the only way to go for many ppl if they can. Until then my prayers are with all those who suffer 24/7 and cant have a life outside their 4 walls. Public Mental Health needs attention badly all over the world Not just the UK
Posted by: Tony, London on 11:56pm Thu 27 Mar 08
I can't say how sad and angry Tabi's situatioon makes me...words aren't my strong point, but as always it comes down to money(which means priorities, the money's always htere for things thry want to do like trident etc)...and Mental Health issues always seem to come last, even though our sick society is making moer and more people sicker and sicker, i think theyt just don't want to know. Only a rant i'm afraid but just can't think of anything more constructive, the treatment for Tabi is there, they just won't pay for it.
I can't say how sad and angry Tabi's situatioon makes me...words aren't my strong point, but as always it comes down to money(which means priorities, the money's always htere for things thry want to do like trident etc)...and Mental Health issues always seem to come last, even though our sick society is making moer and more people sicker and sicker, i think theyt just don't want to know. Only a rant i'm afraid but just can't think of anything more constructive, the treatment for Tabi is there, they just won't pay for it.
Posted by: a.n.other, mars on 11:55am Fri 28 Mar 08
its a disgrace. i cannot put in to words how angry i am. ive watched jane fight and struggle to survive and somehow despite all she has endured she is still with us.
why can people not see she is worth so much more than this. no one deserves to be treated like this. jane is such an intelligent, talented and inspirational person. her compassion and willingness to reach out and help others puts us all to shame.
i wish the article had revealed to you all the true horrors of what she has been subjected to but for most it would be too much to bear.
keep fighting mate. thinking of you always.
its a disgrace. i cannot put in to words how angry i am. ive watched jane fight and struggle to survive and somehow despite all she has endured she is still with us.
why can people not see she is worth so much more than this. no one deserves to be treated like this. jane is such an intelligent, talented and inspirational person. her compassion and willingness to reach out and help others puts us all to shame.
i wish the article had revealed to you all the true horrors of what she has been subjected to but for most it would be too much to bear.
keep fighting mate. thinking of you always.
Posted by: anonymous, anonyimous on 5:29pm Fri 4 Apr 08
i was on attacked on more than one occasion on a ward before....
although nothing was done, i can understand totally why jane/tabi/ickle cannot go there.
i hope that this article will help her in the future. the services should take responsibility for the mistakes they make.... i knew jane before she had seizures and she was a different person, please help her in what ever way you can ...
i was on attacked on more than one occasion on a ward before....
although nothing was done, i can understand totally why jane/tabi/ickle cannot go there.
i hope that this article will help her in the future. the services should take responsibility for the mistakes they make.... i knew jane before she had seizures and she was a different person, please help her in what ever way you can ...
Posted by: Sarah, Yorkshire on 12:40am Sun 20 Apr 08
I cannot begin to say how disgusted i am about the lack of care Jane has received.It is worse than neglegence,there is no excuse for not allowing her to have the treatment she needs at the Retreat at York.There must be something that can be done to help her,i hope and pray she gets the help she needs and deserves.
Please Please Please give the funding needed to help Jane!
I cannot begin to say how disgusted i am about the lack of care Jane has received.It is worse than neglegence,there is no excuse for not allowing her to have the treatment she needs at the Retreat at York.There must be something that can be done to help her,i hope and pray she gets the help she needs and deserves.
Please Please Please give the funding needed to help Jane!
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